The title: Independent Patient Advocates N=not 0, N= many!
You can read it here: Birgits Blog for Data Saves Lives
The message in a short version: Independent patient advocates have a lot to say and they have experience to be an important voice in addition to patient organisation representatives. This independent people have communities in their back, they listen and learn daily. So involve them too. Listen and learn too! They are an important part of the people living with chronic diseases.